Wednesday, February 8, 2017
And they said 2 a.m checks would eventually stop.....
Leaving the hospital after diagnosis.
The nurses at the hospital told me as we were wheeling my son out to go home after diagnosis that after a few months the night time checks would be far and few between each other. For one, they were wrong, and that's ok!
I am tired! Physically and emotionally but sleep isn't as precious as my child's life.
Low blood sugars are scary. Probably one of the most scariest things a diabetic can go through.
I never stoped checking at midnight and two am. I probably will never until he's on his own and even then I'll be that mom who calls or texts to remind him.
When you are a parent of a diabetic life is on hold for you. Sleep is not previlant anymore. And again, that's ok.
So when the nurses said it would eventually ease up and nighttime testing would be no more,i knew that was not going to happen for me.. I've mastered being a zombie, I've mastered testing him without making a noise to wake him up, and I've been able to give him a shot without him even flinching.
Nightime testing is and will always be a constant thing even though we were told it wasn't necessary.
Glucogon is a required thing to carry for emergency lows when food or drink isn't helping, or they are unresponsive. I hope to never crack that bad boy out it's the scariest needle I've ever seen in my life. I retrain myself with expired ones every so often and I cringe. Not only do I not want to use that on him, I don't want to lose my child at night. I will always be tired, stressed out And drained but knowing my child is alive is the only thing that matters so two years later I'm still up like clock work at midnight (usually I stay awake past this) 2 am, 4 am and 6am.
An 8 year old and the diabetic diet part 1
Anyone that is diabetic faces diet changes and restrictions, but being a growing kid that wants to eat constantly is the hardest. Everyday is a battle. Not only is he picky and hell, he also refuses to follow a better diet. Protein and low carb is the key to maintaining healthy blood glucose levels.....but! Meet Malachi who fights to the death for his old eating habits. And NO sugar did NOT cause his diabetes. Type one is an autoimmune disease and his pancreas stoped working. He was very stuck on the basics pre diagnosis. Corn dogs, grilled cheese, lunchables, chicken nuggets ECT.
If you are a T1 parent you know the struggle is very real. Trying to introduce proteins and low carb meals is damn near impossible. But I'm persistent. This Friday is the first appointment with the dietician and nutritionist in hopes to tweek his diet to elevate these high blood sugar readings he's been having.
I lay awake every night trying to understand why my child's sugar levels are so high. Like scary high with no symptoms. I cringe when the meter is counting down to that unknown number. The last several months he's grown and gained weight, GREAT!! But its also thrown his body for a loop. Growth spurts along with stress, illness and puburity mess with there levels. So lets hope Friday becomes a very productive, knowledgeable day for us.
Wish us luck that maybe a simple diet change will do the trick, and pray he will surrender and not fight us on this new transition.
Sick days are the hardest. A simple cold makes his diabetes so much worse. His cold is intensified, his numbers are out of control and dehydration is a huge issue. I work extra long hours and nights to keep him from developing ketones and going into DKA. We fight everyday but days like this with viruses going around and colds surfacing the air, it makes it extremely difficult for everyone, especially him.
Tuesday, February 7, 2017
My word of advice to parents with sick kiddos.
If your child is coming down with a cold or flu, I encourage all parents to give sugar free popsicles, Gatorade and sprite/7-up. Even if your child is not type one diabetic this is still the best thing you can do, as the pancreas is very vulnerable to children during illness. Like me, I did not for one second think my child would be diabetic. Buying a meter and testing blood sugars regularly is also a good just in case method.
Keep your eyes open to new developing symptoms.
Frequent urniation
Excessive thirst
Not eating/as much
Vomiting
Fruity breath And urine
Irritability/aggression
Bed wetting
Pale skin
Weight loss
Sunken face
Dark circles around the eyes
Odd behavior and emotional distress
Shakeness
Sweating
Preventive measures saves lives.
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